Freedom of Information

Title
Prescribing Haemophilia B and Von Willebrand Disease
Reference Number
RF23-486
Request Details

Q1. How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs:

• Alphanate
• Alprolix
• BeneFIX
• HaemateP
• Idelvion
• Refixia
• Rixubis
• Veyvondi
• Voncento
• Wilate
• Willfact

Q2. How many patients have been treated in the past 3 months with:

• Gene therapy for Haemophilia B ONLY
• Desmopressin for Von Willebrand Disease ONLY
• Tranexamic Acid for Von Willebrand Disease ONLY

Q3. Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment:

• During surgery
• On demand to treat bleeding episodes

Q4. Of the patients that were treated with Voncento in the past 3 months, how many patients received treatment:

• During surgery
• On demand to treat bleeding episodes

Q5. How many patients are registered with your trust for the following diseases: Lou?

• Haemophilia B
• Von Willebrand Disease
• Von Willebrand Disease - paediatric patients (age 17 or under)

Response
  • rf23-486-response.pdf
    • Date of Disclosure
    15/08/2023